Happy Sunday.
Normally I use this blog for decor crazy and my home designs. Today I thought I would share something very personal here on the blog.
I normally would not want to do this but I thought maybe by sharing my personal story here it might help some of you and help me with more information and help.
I know with all the changes I do to my home a lot of you refer to me as someone that is never idle and is always moving and doing things. That is so true about me.
The personal part I am going to share is I fight through a rough autoimmune disease that can really be debilitating.
It is Fibromyalgia
Here is the Webster Dictionary meaning of Fibromyalgia.
fibromyalgia
nounDefinition of fibromyalgia
: a chronic disorder characterized by widespread pain, tenderness, and stiffness of muscles and associated connective tissue structures that is typically accompanied by fatigue, headache, and sleep disturbances
I suffer with it all.
It comes and goes in my life.
I have noticed in the past year I have had
more flare ups than normal.
I use to just move through the pain and take
Advil or Aleve on occasional flare ups.
In the last year that has not worked and I
have worked with my doctor on some of the
biologics out there with FDA approval to
help.
The good news about these newer drugs is
they work well to keep the pain and fatigue
under control.
The bad news is they have harsh side
effects.
The one that I suffer from is brain fog and
memory loss.
While the medications were working for the
flare ups
I was living in a fog and not remembering
much of anything most days.
My mom had an important test at the hospital and I even talked to her the night before on what time I would pick her up etc. That night when I went to bed I forgot competely and did not set my alarm and my mom called me at the time I was to be at her place to pick her up to see where I was. I have never done anything like this. I am always early and never late and very organized in my life.
That was just the icing on the cake for all theforgetful moments I had been having on a daily basis!
I decided to wean myself off the biologic and cut the dose. The good news is that the brain fog and memory stuff is so much better. The bad news is I am in so much pain. There are days I can hardly walk. It effects my feet, ankles and achilles.
This is the most frustrating part of my life. So I am reaching out to all of you today to see what natural therapies might be out there and how they might be giving you relief.
I have been doing a lot of research on the CBD oils and exercises help. Yoga is a big one but I am just not a yoga kind of gal.
The CBD oils are getting really good results. The issue with those are you have to be careful to find a reputable company that is making these oils here in the USA and are not scammers. The prices are all over the place for these. I do see my doctor at the end of the month to go over some alternatives.
I hope she may have some tricks up her sleeve to help me get off the drugs
and more into natural or off brand Rx's that can give relief without the harsh side effects.
At this point for quality of life I am willing to try anything that might work with in reasonable perimeters.
I know medical marijuana is the big thing now. I do not think I want to go in that direction but am willing to try the CBD oil with out the chemical that cause the high in marijuana. I am crazy enough to have that to deal with!
So if any of you suffer from anxiety, arthritis, fibromyalgia, chronic fatigue syndrome etc. etc. and have tried some natural help I would love for you to leave me a comment andinformation here on the blog.
Have a great start to the new week.Hugs,
Kris